It's time to look back with you and celebrate all that we achieved together for the Li-Fraumeni syndrome community in 2023:
- Connected 47 LFS families in need to $47,000 in LFS Hardship Grants
- $124,320 in LFS Hardship Grants awarded to 140 families since 2021!
- Feb 28 - March 2, 2023: community members Nicole Cable and Lon Humpert went to Washington DC and represented Living LFS at Rare Disease Week on Capitol Hill
- March: Li-Fraumeni Syndrome Awareness Month
- March 20: LFS Awareness Day
- April: Voted in new Board of Directors
- October: Confirmed the 2024 Living LFS Jennifer Mallory Family Camp at Flying Horse Farms, Mt. Gilead, OH
- November 2-5: brought together 30 members of the LFS community for the LFS Adults-Only Nashville Getaway
- In 2023, we also continued our monthly series of Zoom discussion groups for the LFS community:
- Jan: Cards Against Humanity (adults only!)
- Feb: Guilt and LFS
- Apr: Supporting a Balanced Relationship with Movement, Exercise and Body Image with Dr. Camella Rising
- May: How to Find the Right Therapist
- Jun: Caring for the Caregiver
- Jul: General LFS Social Online Chat
- Aug: The S Word: Sex After Cancer with Jenna Perkins, WHNP-BC (watch the presentation on demand)
- Sep - General LFS Social Online Chat
- Subscribe to our mailing list to be notified of future online monthly gatherings!
- Living LFS board member Catherine Wilsnack, LMSW authored or co-authored papers on Li-Fraumeni syndrome, and Catherine and fellow Living LFS board member and Medical Advisory Chair Jaclyn Schienda, SCM, CGC spoke on LFS, led discussion groups, and represented Living LFS at conferences and events throughout the year
- Supported 2,132 total active members in 930 total posts in the private LFS Support Group and LFS Family & Friends Support Group on Facebook
- Maintained platinum transparency level at GuideStar
- Maintained 100% 4-star charity at Charity Navigator
Let's Make 2024 Strong!
With your help to meet our fundraising goal, in 2024 Living LFS will be able to provide even more Hardship Grants for LFS families in need, more opportunities for the LFS community to come together, and more ways to fulfill our mission to encourage, empower, and educate those living with Li-Fraumeni syndrome by connecting them with care, resources, and others who are Living LFS.
Your support makes all of our work for the LFS community possible. Thank you!
From Living LFS' all-volunteer Board of Directors, we wish you a happy, healthy, and peaceful 2024!
