I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
1969, SOFT TISSUE SARCOMAS, BREAST CANCER- A FAMILY SYNDROME? In 1969, Dr. Joseph Fraumeni and Dr. Frederick Li were working at the National Institutes of
Generally, everyone should be cautious around radiation, but also realize radiation is all around us. When we are diagnosed with LFS, one of the first
Claire Roberts shares their family’s story of not only one, but two children facing cancer and learning some of the challenges families with Li-Fraumeni Syndrome
Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
What is Genetic Counseling? Genetic Counselors are a group of professionals with a Master’s level degree who work in clinics, hospitals, public health and private
Video credit: CTV Toronto: Sick Kids Cancer genetics Program At age 3, now 14 year old Alaya was diagnosed with Leukemia. 10 years later, she
Since Li-Fraumeni Syndrome cancers can pop up just about anywhere in the body and at any age, screening can be a bit of a challenge.
Living LFS means extra scans. Preventative scans. Screening Scans. Treatment Scans. Follow-up scans. Annual Scans. Quarterly scans. This is after an undue amount of time
