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TBD: Living LFS Family Camp

Nancy Jen and Angie meet at camp in 2019

Mutant Meetups

2020 Rare Disease Week on Capitol Hill

2020 Rare Disease Week on Capitol Hill

Living LFS 2019 Family Camp Group Photo

2019 Living LFS Family Camp

Living LFS at the 2018 LFS REACH 18 International Symposium

2018 LFS REACH 18 International Symposium

Love Never Dies, Ilonka Dee's tribute to her son Kaj*

2017 Rare Disease Week on Capitol Hill

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