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Events

2023 LFS Adults-Only Nashville Getaway

2023 LFS Adults-Only Nashville Getaway

March 2023 is LFS Awareness Month and March 20th, 2023 is LFS Awareness Day!

Li-Fraumeni Syndrome Awareness 2023

Congress, here we come!! All of the advocates for rare diseases and ultra-rare diseases on the steps at Rare Disease Week on Capitol Hill 2023

2023 Rare Disease Week on Capitol Hill

Living LFS Jennifer Mallory Family Camp 2022

Living LFS Jennifer Mallory Family Camp 2022

Talking to Kids About Li-Fraumeni Syndrome | Living LFS Webinar

WEBINAR: Talking to Kids About LFS

Treva Vetter at Rare Disease Week 2021

2021 Virtual Rare Disease Week on Capitol Hill

Li-Fraumeni Syndrome Awareness Day 2021

Li-Fraumeni Syndrome Awareness 2021

Nancy Jen and Angie meet at camp in 2019

Mutant Meetups

2020 Rare Disease Week on Capitol Hill

2020 Rare Disease Week on Capitol Hill

Living LFS 2019 Family Camp Group Photo

2019 Living LFS Family Camp

Living LFS at the 2018 LFS REACH 18 International Symposium

2018 LFS REACH 18 International Symposium

Love Never Dies, Ilonka Dee's tribute to her son Kaj*

2017 Rare Disease Week on Capitol Hill

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