Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
Key Rare Cancer Syndrome Gets An Awareness Day and Month
The genetic mutation that causes Li-Fraumeni syndrome has the potential to unlock cancer FOR IMMEDIATE RELEASE: February 5, 2021 (download release as PDF) East Coast:
Getting a Li-Fraumeni Syndrome Diagnosis
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
How the Elephant Became a Symbol of Hope for Our Living LFS Community
The TP53 gene is a tumor-suppressor gene, often called “the guardian of the genome.” In this post, Living LFS member Ilonka Dee shares how research
