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Every day is rare disease day when you have LFS. www.rarediseaseday.org/stories/6226
Dr. Allison Werner-Lin helps families with hereditary cancer syndromes Like LFS cope with the physical and psychosocial changes and loss they cause for families, especially children.
Thank you for choosing Living LFS as your Amazon Smile Charity. We know there are many options and we are grateful you believe in our mission. In October- December last year we received $148 from Amazon Smile, helping us complete our mission.
Latest Blog Posts
By Andi Last I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As I wrote it, I was awaiting the results of yet another mammogram. I find that gathering feelings of hope and gratitude helps me manage scanxiety – and every day of living with LFS. The results of the mammogram were benign. _____ In the past ten years, I’ve developed countless lines around my eyes and grey in my … read more
What is Metformin? Metformin is an oral medication that decreases the amount of sugar made in the liver, helps the body use sugar and recognize the insulin receptors again. First created from French Lilac in the 1920’s to help manage diabetes, Metformin was put aside when insulin was developed. Decades later, in the 50’s the French began clinical trials and Metformin eventually became widely used in Canada, the UK and in the US during the mid 90’s to treat type … read more