Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
The New LivingLFS.org
For those of you who are new, welcome, we are so happy you’ve joined us! For those who have been with us, we’re so glad
Mental health is dope y'all
When I was diagnosed with Li-Fraumeni syndrome in 2016 and then three weeks later with stage 3 brain cancer, I felt lost and desperate. I
Thankful for Hope: Anniversaries, Lines, and Grey Hairs
I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As
