Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
Financial Support Available for Families Affected by High Cancer Risk During Li-Fraumeni Syndrome Awareness Month
FOR IMMEDIATE RELEASE: February 27, 2022 download as PDF Andi LastVice President, Living LFS, Inc.andi@livinglfs.org March is Li-Fraumeni Syndrome Awareness Month, and for the third
2022 Year in Review
As we prepare to ring in 2023, we here at Living LFS want to take a moment to look back with you and celebrate all
Perspective on Previving Cancer
by Aimee I used to have a lot of issues with the term “previvor” because it frightened me. It was an acknowledgement that I was
