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Catch up on previous newsletters below!
February 7, 2022: Mark your calendars! Living LFS is excited to announce March 2022 as the second annual Li-Fraumeni Syndrome Awareness Month, and March 20th, 2022, as Li-Fraumeni Syndrome Awareness Day! Activities to be announced, LFS Awareness t-shirts available for order soon, and the applications are open through March 6th for $12,000 in LFS Hardship Grants. Check the list for ways to get involved in spreading awareness of LFS.
December 24, 2021: The spirit of the season.
November 30, 2021: Today is Giving Tuesday. Free holiday ornament with your donation of $100 or more to Living LFS!
November 4, 2021: Giving Tuesday is November 30. A thank you message from the Living LFS board with information about all the good you’ve helped us achieve in 2021. Thanks for supporting those living with Li-Fraumeni syndrome!
October 25, 2021: Talking to Kids About LFS Webinar. Genetic counselors Jaclyn Schienda and Carly Grant share tips and tricks for finding the right time, place and strategies for talking to children about LFS.
October 5, 2021: By funding $13,530 in LFS hardship grants, awarded today to nine families struggling with the costs of living with Li-Fraumeni syndrome, the Living LFS community has ensured that founder Jennifer Mallory’s passion lives on, and her goal is being realized.
March 21, 2021: Thanks to our 2021 LFS Awareness Month participants, donors and sponsors, we were able to award 43 hardship grants!
March 20, 2021: Today is Li-Fraumeni Syndrome Awareness Day 2021!
March 9, 2021: LFS Awareness Month updates: more hardship grants, partners in LFS Awareness, media and LFS Awareness Day events
March 1, 2021: Kicking off the first annual LFS Awareness Month! Practical actions you can take to help spread the word about Li-Fraumeni Syndrome
Feb 5, 2021: Save the date for the first annual Li-Fraumeni Syndrome Awareness Month! Announcing ten $530 LFS hardship grants, and why we honor Jen Mallory and John Berkeley
Dec 30, 2020: Happy New Year from Living LFS! New partnerships with Imerman Angels, Coalition Against Childhood Cancer, and EDISYN
Dec 24, 2020: Happy Holidays from Living LFS!
Dec 2, 2020: Join us! Confirm your subscription to the Living LFS mailing list
Nov 30, 2020: Please support those with Li-Fraumeni Syndrome on Giving Tuesday