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Team P53: Li-Fraumeni Syndrome

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Catch up on previous newsletters below!



February 17, 2023: March is LFS Awareness Month! LFS Hardship Grant applications are being accepted through March 6, LFS Awareness Day t-shirts available for order, upcoming events, and more!


December 30, 2022: Look what we did together! Living LFS’ 2022 Year in Review

December 24, 2022: Holiday wishes from Living LFS

November 29, 2022: Today is Giving Tuesday. We’ll send you a free Living LFS t-shirt with your donation of $100 or more!

November 24, 2022: Giving thanks today. There is always something to be thankful for.

November 7, 2022: Mental health check-in, Aimee’s perspective on previving cancer, and our new partnership with the Melodic Caring Project!

October 5, 2022: How we honor Jen Mallory: $10,000 in LFS Hardship Grants awarded, 2022 Family Camp Recap

March 31, 2022: Li-Fraumeni Syndrome Awareness Month recap: THANK YOU for supporting the LFS community!

March 20, 2022: Celebrating Li-Fraumeni Syndrome Awareness Day, honoring Living LFS founder Jennifer Mallory.

March 7, 2022: LFS Hardship Grant application window is now closed, Taylor’s story of living with LFS, Thursday lunch chats during LFS Awareness Month, mandala and t-shirt updates, tax-efficient charitable giving, and LFS mentor angels.

March 1, 2022: March is Li-Fraumeni Syndrome Awareness Month! Updates on LFS Hardship Grants, LFS Awareness Day t-shirts, Hailey’s story of living with LFS, and honoring our LFS community loved ones who have passed on. 

February 12, 2022: Help us provide more LFS Hardship Grants by purchasing an original hand-drawn mandala by Inge Vandormael and ordering your official 2022 LFS Awareness Day t-shirts

February 7, 2022: Mark your calendars! Living LFS is excited to announce March 2022 as the second annual Li-Fraumeni Syndrome Awareness Month, and March 20th, 2022, as Li-Fraumeni Syndrome Awareness Day! Activities to be announced, LFS Awareness t-shirts available for order soon, and the applications are open through March 6th for $12,000 in LFS Hardship Grants. Check the list for ways to get involved in spreading awareness of LFS.


December 24, 2021: The spirit of the season.

November 30, 2021: Today is Giving Tuesday. Free holiday ornament with your donation of $100 or more to Living LFS!

November 4, 2021: Giving Tuesday is November 30. A thank you message from the Living LFS board with information about all the good you’ve helped us achieve in 2021. Thanks for supporting those living with Li-Fraumeni syndrome!

November 2, 2021: Talking to Kids About LFS Webinar Replay – watch now!

October 25, 2021: Talking to Kids About LFS Webinar. Genetic counselors Jaclyn Schienda and Carly Grant share tips and tricks for finding the right time, place and strategies for talking to children about LFS.

October 5, 2021: By funding $13,530 in LFS hardship grants, awarded today to nine families struggling with the costs of living with Li-Fraumeni syndrome, the Living LFS community has ensured that founder Jennifer Mallory’s passion lives on, and her goal is being realized.

August 11, 2021: Fall 2021 LFS Hardship Grant Applications now accepted! Apply for a hardship grant, read about the 2021 Virtual Rare Disease Week on Capitol Hill, and more LFS stories in the media

March 30, 2021: 2021 LFS Awareness Month activity recap, announcement of the Living LFS Jennifer Mallory Family Camp, Aug 11-14, 2022

March 21, 2021: Thanks to our 2021 LFS Awareness Month participants, donors and sponsors, we were able to award 43 hardship grants!

March 20, 2021: Today is Li-Fraumeni Syndrome Awareness Day 2021! 

March 9, 2021: LFS Awareness Month updates: more hardship grants, partners in LFS Awareness, media and LFS Awareness Day events

March 1, 2021: Kicking off the first annual LFS Awareness Month! Practical actions you can take to help spread the word about Li-Fraumeni Syndrome

Feb 5, 2021: Save the date for the first annual Li-Fraumeni Syndrome Awareness Month! Announcing ten $530 LFS hardship grants, and why we honor Jen Mallory and John Berkeley 


Dec 30, 2020: Happy New Year from Living LFS! New partnerships with Imerman Angels, Coalition Against Childhood Cancer, and EDISYN

Dec 24, 2020: Happy Holidays from Living LFS!

Dec 2, 2020: Join us! Confirm your subscription to the Living LFS mailing list

Nov 30, 2020: Please support those with Li-Fraumeni Syndrome on Giving Tuesday