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Team P53: Li-Fraumeni Syndrome

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Catch up on previous newsletters below!



August 11, 2021: Fall 2021 LFS Hardship Grant Applications now accepted! Apply for a hardship grant, read about the 2021 Virtual Rare Disease Week on Capitol Hill, and more LFS stories in the media

March 30, 2021: 2021 LFS Awareness Month activity recap, announcement of the Living LFS Jennifer Mallory Family Camp, Aug 11-14, 2022

March 21, 2021: Thanks to our 2021 LFS Awareness Month participants, donors and sponsors, we were able to award 43 hardship grants!

March 20, 2021: Today is Li-Fraumeni Syndrome Awareness Day 2021! 

March 9, 2021: LFS Awareness Month updates: more hardship grants, partners in LFS Awareness, media and LFS Awareness Day events

March 1, 2021: Kicking off the first annual LFS Awareness Month! Practical actions you can take to help spread the word about Li-Fraumeni Syndrome

Feb 5, 2021: Save the date for the first annual Li-Fraumeni Syndrome Awareness Month! Announcing ten $530 LFS hardship grants, and why we honor Jen Mallory and John Berkeley 


Dec 30, 2020: Happy New Year from Living LFS! New partnerships with Imerman Angels, Coalition Against Childhood Cancer, and EDISYN

Dec 24, 2020: Happy Holidays from Living LFS!

Dec 2, 2020: Join us! Confirm your subscription to the Living LFS mailing list

Nov 30, 2020: Please support those with Li-Fraumeni Syndrome on Giving Tuesday