Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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Mission Statement
We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
Award-Winning Journalist and Author Lawrence Ingrassia to Join Family Camp for Those Impacted by Genetic Cancer Disorder
download as pdf FOR IMMEDIATE RELEASE: July 24, 2024 Non-profit organization Living LFS is excited to welcome author Lawrence Ingrassia to its upcoming family camp
Families Facing Rare Cancer Syndrome to Gather for Empowering Camp Experience with Acclaimed Author
download as pdf FOR IMMEDIATE RELEASE: June 17, 2024 Living LFS, a non-profit supporting families with Li-Fraumeni syndrome (LFS), announces its Jennifer Mallory Family Camp
Families With High Cancer Risk Get Financial Relief During Li-Fraumeni Syndrome Awareness Month
download as PDF FOR IMMEDIATE RELEASE: February 23, 2024 Andi LastPresident, Living LFS, Inc.andi@livinglfs.org March 2024 marks the fourth annual Li-Fraumeni Syndrome Awareness Month, and
