Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
Panic Attacks
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
8 Sophisticated Ways to Donate to Charity and Reduce Your Taxes
If you regularly make large, generous donations to Living LFS or other 501(c)(3) non-profit organizations, make sure you’re getting the biggest tax break possible for
The Universe Had Other Plans: Lauren's Story
I found out I was pregnant with my first baby three days after I was diagnosed with Li-Fraumeni Syndrome. My husband and I had been
