Blog
Help Us Fill the Gap Left by Amazon Smile
$3,947.58. That’s how much money went into the Li-Fraumeni syndrome (LFS) community, thanks to everyone who chose Living LFS as their Amazon Smile charity. We
May 3 is International LFS Awareness Day - 5/3 for p53
Info Cards for International LFS Awareness! We’re excited to make new resources available to spread awareness of Li-Fraumeni syndrome (LFS) on May 3, International LFS
Leader of the Band / A Family Affair
by Tom Connolly Donald Connolly, born 1915, passed from Astrocytoma September 3rd, 1958. He was my dad, and September 3rd, the day he died was
Financial Support Available for Families Affected by High Cancer Risk During Li-Fraumeni Syndrome Awareness Month
FOR IMMEDIATE RELEASE: February 27, 2022 download as PDF Andi LastVice President, Living LFS, Inc.andi@livinglfs.org March is Li-Fraumeni Syndrome Awareness Month, and for the third
2022 Year in Review
As we prepare to ring in 2023, we here at Living LFS want to take a moment to look back with you and celebrate all
Perspective on Previving Cancer
by Aimee I used to have a lot of issues with the term “previvor” because it frightened me. It was an acknowledgement that I was
How a Family Cancer Story Became The Hope of Elephants
A girl struggles to decide whether to be tested for the genetic mutation linked to her father’s cancer. Would it be better not to know
Panic Attacks
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
8 Sophisticated Ways to Donate to Charity and Reduce Your Taxes
If you regularly make large, generous donations to Living LFS or other 501(c)(3) non-profit organizations, make sure you’re getting the biggest tax break possible for
The Universe Had Other Plans: Lauren's Story
I found out I was pregnant with my first baby three days after I was diagnosed with Li-Fraumeni Syndrome. My husband and I had been
The Realities of LFS and Cancer: Elizabeth's Story
I and my one year old baby both have LFS. Late last Fall my baby was diagnosed with Adrenocortical Carcinoma. Since then we have been
Identifying Li-Fraumeni Syndrome: Taylor's Story
Hello. My name is Taylor. I am twenty years old and I was diagnosed with Li-Fraumeni Syndrome in December of 2021. When I was seven
