Blog
MRIs and Kids
Since Li-Fraumeni Syndrome cancers can pop up just about anywhere in the body and at any age, screening can be a bit of a challenge.
In Memory of Andrea- Faith, Trust, and Pink Lemonade Cupcakes
Many of us met Andrea at an LFS conference in Boston a few years ago. She and her mother Kim are well known within our
Kelilah's Keys to "Beating" Cancer and other Crap
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
Genetic Testing and Discrimination
One big concern that many have when considering genetic testing for hereditary conditions like Li-Fraumeni Syndrome is if they will be discriminated against by insurance
The p53 Song by Roland Houben
Who knew there was a song about p53? Many thanks to Roland Houben for this catchy tune about our favorite tumor suppressor. Post by Living
Yasmin Shares about the 3rd Annual LFS Conference in Brazil
My Experience in My Second LFS Meeting by Yasmin Abdalla Shaaban So, I will talk a little about my personal perception on the last 3rd
MOSAICISM in Li-Fraumeni Syndrome
We have this question pop up frequently in our support group. What is mosaicism? On a very basic level, genetic mosaicism means a person has
The BEST thing I learned by Living LFS is...
It is difficult to imagine anything good coming from being diagnosed with Li-Fraumeni Syndrome. Yet as our members remind us, the good is in what
Scanxiety Rescue
Living LFS means extra scans. Preventative scans. Screening Scans. Treatment Scans. Follow-up scans. Annual Scans. Quarterly scans. This is after an undue amount of time
MD Anderson Cancerwise: Li-Fraumeni Syndrome survivor: 'Don’t let cancer define you'
Lainie Jones has had five primary cancers, as well as Li-Fraumeni syndrome. But she’s stayed optimistic and refuses to let cancer control her life. Source:
World Rare Disease Day 2016: Li-Fraumeni Syndrome
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
Should we ((HEART)) CoQ10?
A friend with LFS recently asked me about CoQ10 supplements and their anti cancer effects. Supplements are yet to be regulated, certified or otherwise cross
