Blog
Mutant Vs Monster: Andi Last's Tale of Li-Fraumeni Syndrome
My name is Andi Last. That’s my husband Jay Last in the video with me. I’m the mutant, and he’s my warrior. In March 2015,
Li-Fraumeni Syndrome- Cancer in Olympic Proportions. The Story of Brazil's p53 Mutation.
The 2016 Summer Olympics are underway in Brazil. We watch as the world comes together in Rio to celebrate and honor feats of strength, endurance
Regular Screening In LFS helps Survival
Video credit: CTV Toronto: Sick Kids Cancer genetics Program At age 3, now 14 year old Alaya was diagnosed with Leukemia. 10 years later, she
MO Songs for KERRY Fundraiser for Li-Fraumeni Syndrome
James Higgins lost his dad, his sister and 2 daughters to LFS cancers. Cancer came after him twice. This is his story and how he
Living with Tough LFS Decisions
There really are no easy decisions where cancer is concerned. It’s usually an exercise in choosing between a tumor and a hard place. Some people
COTI-2 - Big Excitement surrounding a SMALL Molecule.
One of the most exciting presentations at the REACH 16 International LFS Conference was information presented on COTI-2, a novel small molecule that helps repair
A Father's Day Tribute
Almost three years ago, the Peytavin family’s journey with cancer began. It is often said that when a family member gets cancer, the family gets
The REACH 2016 International Li-Fraumeni Syndrome Conference
On Wednesday, June 1st, 2016 the LFS family gathered at the Sheraton Capitol Square in Columbus, Ohio. This family includes people with TP53 mutations, those
MRIs and Kids
Since Li-Fraumeni Syndrome cancers can pop up just about anywhere in the body and at any age, screening can be a bit of a challenge.
In Memory of Andrea- Faith, Trust, and Pink Lemonade Cupcakes
Many of us met Andrea at an LFS conference in Boston a few years ago. She and her mother Kim are well known within our
Kelilah's Keys to "Beating" Cancer and other Crap
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
Genetic Testing and Discrimination
One big concern that many have when considering genetic testing for hereditary conditions like Li-Fraumeni Syndrome is if they will be discriminated against by insurance
