Blog
Panic Attacks
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
8 Sophisticated Ways to Donate to Charity and Reduce Your Taxes
If you regularly make large, generous donations to Living LFS or other 501(c)(3) non-profit organizations, make sure you’re getting the biggest tax break possible for
The Universe Had Other Plans: Lauren's Story
I found out I was pregnant with my first baby three days after I was diagnosed with Li-Fraumeni Syndrome. My husband and I had been
The Realities of LFS and Cancer: Elizabeth's Story
I and my one year old baby both have LFS. Late last Fall my baby was diagnosed with Adrenocortical Carcinoma. Since then we have been
Identifying Li-Fraumeni Syndrome: Taylor's Story
Hello. My name is Taylor. I am twenty years old and I was diagnosed with Li-Fraumeni Syndrome in December of 2021. When I was seven
Stay Strong and Live Life: Hailey's Story
My name is Hailey and in May of 2020, I found out I was pregnant with my now 1 year old. I also found out
2022 Living LFS Mandala
Make a $530 donation to support Living LFS Hardship Grants and you can own this one-of-a-kind mandala, currently being hand-drawn by the illustrious Inge Vandormael
$12,000 in hardship grants to be awarded on Li-Fraumeni Syndrome Awareness Day, March 20
Living LFS will celebrate Li-Fraumeni Syndrome Awareness Month throughout March FOR IMMEDIATE RELEASE: February 6, 2022 Greg Harper President, Living LFS, Inc.greg@livinglfs.org Andi Last Vice
The Early Detective: Don’t let cancer define you
I had adrenal cancer as an infant in 1985, so the word ‘survivor’ has been part of my vocabulary my whole life. Even though I was too young to
Fall 2021 LFS Hardship Grants: from $10K to $13,530
“Losing my voice does not mean I won’t be heard.” – Jennifer Mallory Today, October 5, 2021, is one year since Living LFS founder Jennifer
Rare Disease Week 2021
Treva Vetter is a Registered Nurse, survivor, and patient advocate who is living with Li-Fraumeni Syndrome. Treva represented Living LFS during the Virtual Rare Disease
Media Stories from the Li-Fraumeni Syndrome Community (Part 2)
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international