Blog
Holiday Angels
The holidays can be bittersweet when living LFS. We are grateful for each day, each memory, but we also experience an unfair helping of loss.
Variants of Uncertain Significance(VUS) in LFS
Few things are more frustrating than looking for answers and getting the response- we don’t know. Sometimes, a person agonizes over the decision to be
Joining the Li-Fraumeni Syndrome Support Group on Facebook
Our private Living LFS Li-Fraumeni Syndrome Support Group continues to grow! For a syndrome that is constantly said to be so rare we are up
Li-Fraumeni in the movies
by Andi Last – Sean Hannity and Hercules have made Travis Tritt the first person to ever say the words “Li-Fraumeni Syndrome” in a major
Genetic Counseling for Li-Fraumeni Syndrome.
November 9, 2017 was the first Genetic Counseling Awareness Day! Andi Last met up with Wendy Kohlmann, MS, CGC, a licensed genetic counselor at The University of
In Memory of D'Ana Reed. Founder. Mutant. Sister. Friend.
D’Ana and her sister Courtney helped found Living LFS. They soon became our mutant sisters as we worked to bring those living LFS together.
Beauty in an Unlikely Place: Fannie Remembers Her Mother's Breast Cancer Journey
Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she
Using Family Loss to Sing Awareness of LFS for Mo and Kerry
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age
2016 Living LFS Limited Edition Elephant T-Shirt Fundraiser- ENDS Oct. 14, 2016
This year’s one of a kind T-shirt for LFS awareness features the majestic elephant. Elephants signify strength, power, wisdom, and loyalty. For the LFS community,
Rethinking PINK in October- Why Andi Doesn't Do Pink and What YOU CAN DO To support Breast Cancer Awareness.
Andi is a breast cancer survivor. She has LFS and explains why she does not do PINK in October. She also gives us some valuable
Raising Two Children with Cancer, The Roberts Family's story of living LFS
Claire Roberts shares their family’s story of not only one, but two children facing cancer and learning some of the challenges families with Li-Fraumeni Syndrome
Positively Living LFS, It's NOT a Death Sentence.
Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
