Blog
Using Family Loss to Sing Awareness of LFS for Mo and Kerry
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age
2016 Living LFS Limited Edition Elephant T-Shirt Fundraiser- ENDS Oct. 14, 2016
This year’s one of a kind T-shirt for LFS awareness features the majestic elephant. Elephants signify strength, power, wisdom, and loyalty. For the LFS community,
Rethinking PINK in October- Why Andi Doesn't Do Pink and What YOU CAN DO To support Breast Cancer Awareness.
Andi Last is a breast cancer survivor. She has LFS and explains why she does not do PINK in October. She also gives us some
Raising Two Children with Cancer, The Roberts Family's story of living LFS
Claire Roberts shares their family’s story of not only one, but two children facing cancer and learning some of the challenges families with Li-Fraumeni Syndrome
Positively Living LFS, It's NOT a Death Sentence.
Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
Genetic Counseling in LFS.
What is Genetic Counseling? Genetic Counselors are a group of professionals with a Master’s level degree who work in clinics, hospitals, public health and private
Mutant Vs Monster: Andi Last's Tale of Li-Fraumeni Syndrome
My name is Andi Last. That’s my husband Jay Last in the video with me. I’m the mutant, and he’s my warrior. In March 2015,
Li-Fraumeni Syndrome- Cancer in Olympic Proportions. The Story of Brazil's p53 Mutation.
The 2016 Summer Olympics are underway in Brazil. We watch as the world comes together in Rio to celebrate and honor feats of strength, endurance
Regular Screening In LFS helps Survival
Video credit: CTV Toronto: Sick Kids Cancer genetics Program At age 3, now 14 year old Alaya was diagnosed with Leukemia. 10 years later, she
MO Songs for KERRY Fundraiser for Li-Fraumeni Syndrome
James Higgins lost his dad, his sister and 2 daughters to LFS cancers. Cancer came after him twice. This is his story and how he
Living with Tough LFS Decisions
There really are no easy decisions where cancer is concerned. It’s usually an exercise in choosing between a tumor and a hard place. Some people
COTI-2 - Big Excitement surrounding a SMALL Molecule.
One of the most exciting presentations at the REACH 16 International LFS Conference was information presented on COTI-2, a novel small molecule that helps repair
