LFS Hardship Grants
Living with Li-Fraumeni syndrome (LFS) can be financially devastating to a family. Extensive annual surveillance to detect cancer as early as possible when it is most treatable, specialized treatments and equipment should LFS cancers occur, and long distance travel to cancer centers – it all adds up. Insurance may not cover enough – or any – of the costs for care. The continual “cancering” that plagues these families often results in extended periods of lost wages, leaving them to choose between paying monthly bills or managing cancer.
To help LFS families defray these steep costs, in 2021 Living LFS established the LFS Hardship Grant program. Grants are awarded twice a year: every LFS Awareness Day, March 20, and October 5 in honor of Living LFS founder Jennifer Mallory (March 20, 1976 – October 5, 2020). Sign up for our mailing list to be notified when the grant application window opens, approximately 6 weeks prior to the award date. Help us help more LFS families: Donate.
41 LFS Hardship Grants Awarded – $41,000 Total
Pledged: (12) $1,000 grants – $12,000 total
Awarded: (31) $1,000 grants – $31,000 total! ($9,000 of that paid directly to 9 applicants by an anonymous donor!)
52 LFS Hardship Grants Awarded – $36,320 Total
Pledged: (10) $530 grants – $5,300 total
Awarded: (43) $530 grants – $22,790 total! ($11,660 of that paid directly to 22 applicants by an anonymous donor!)
With Gratitude to Our Donors
None of these LFS Hardship grants would have been possible if it wasn’t for all of the people who donated to Living LFS. This is just a partial list. Special thanks to an anonymous donor who has funded over $20,000 in LFS Hardship Grants, paid directly to applicants. We cannot thank you enough.
Wren Valley Apparel
Rachel & Philip Mondy
Debbie Leanne Photo
Lon & Linda Humpert
Laurie Weaver Quadracci
Susan Peterson Frary
Joshua C Hubbard
Carl Birdman Myers
Anne Bauer Peytavin
Barbara Goetke Mills
Art & Millie Moody