LFS Hardship Grants
Living with Li-Fraumeni syndrome (LFS) can be financially devastating to a family. Extensive annual surveillance to detect cancer as early as possible when it is most treatable, specialized treatments and equipment should LFS cancers occur, and long distance travel to cancer centers – it all adds up. Insurance may not cover enough – or any – of the costs for care. The continual “cancering” that plagues these families often results in extended periods of lost wages, leaving them to choose between paying monthly bills or managing cancer.
To help LFS families defray these steep costs, in 2021 Living LFS established the LFS Hardship Grant program. Grants are awarded twice a year: every LFS Awareness Day, March 20, and October 5 in honor of Living LFS founder Jennifer Mallory (March 20, 1976 – October 5, 2020). Sign up for our mailing list for hardship grant updates. Help us help more LFS families: Donate.
Our Impact
2023
47 LFS Hardship Grants Awarded – $47,000 total
October 2023
Pledged: (5) $1,000 grants – $5,000 total
Awarded: (9) $1,000 grants – $9,000 total!
The next round of LFS Hardship Grants will be awarded on Li-Fraumeni Syndrome Awareness Day, March 20, 2024. The grant application window will most likely be open from February 6 – March 6, 2024.
March 2023
Pledged: (10) $1,000 grants – $10,000 total
Awarded: (38) $1,000 grants – $38,000 total!
($11,000 of that paid directly to 11 applicants by an anonymous donor!)
2022
41 LFS Hardship Grants Awarded – $41,000 Total
October 2022
Pledged: (5) $1,000 grants – $5,000 total
Awarded: (10) $1,000 grants – $10,000 total! Read more details
March 2022
Pledged: (12) $1,000 grants – $12,000 total
Awarded: (31) $1,000 grants – $31,000 total!
($9,000 of that paid directly to 9 applicants by an anonymous donor!)
2021
52 LFS Hardship Grants Awarded – $36,320 Total
October 2021
March 2021
Pledged: (10) $530 grants – $5,300 total
Awarded: (43) $530 grants – $22,790 total!
($11,660 of that paid directly to 22 applicants by an anonymous donor!)

Grant Recipients
With Gratitude to Our Donors
None of these LFS Hardship grants would have been possible if it wasn’t for all of the people who donated to Living LFS. This is just a partial list. Special thanks to an anonymous donor who has funded over $20,000 in LFS Hardship Grants, paid directly to applicants. We cannot thank you enough.
Judi Heitz
Valerie Pettijohn
Snarky Cancer
Wren Valley Apparel
Rachel & Philip Mondy
Debbie Leanne Photo
Susan Frary
Karen Stivers
Brenda Courtney
Greg Harper
Trishia Shelly-Stephens
Inge Vandormael
Lisa Wickens
Sparklerific
Andi Last
Ginny Davis
Robyn Hamilton
Lon & Linda Humpert
Laurie Weaver Quadracci
Susan Peterson Frary
Ilonka Dee
Emily Carriveau
Nancy Lehman
Maureen Gelches
Aaron Bandstra
Kate Fritzsche

Connie Bowe
Kellie Scroggie
Nina Christina
Wendy Kohlmann
Monica King-Fontenot
Melissa Laplante
Carly Grant
Tori Klein
Joshua C Hubbard
Shana Ramesh
Louis Hudon
Kelly Agbay
Eric Larsen
Eni Bica
Carl Birdman Myers
Georgia Cook
Dan Alosco
Claire DeMaio
Dottie Collins-Guy
Ana Paulina
Debbie Harper
Erinne Matte-Daniels
Ben Collins
Brooke Clay
Patricia Reed
Katerina Papoutsis
Craig Kirkpatrick
Barb Kirkpatrick
Anne Bauer Peytavin
Casey Ford
Jennifer Mills
Barbara Goetke Mills
Laura Kostura
Angie Robinson
Joe Cardia
Lisa Nahill
Michelle Potter
Cindy Shankar
Janis Williams
Becki Dunton
Michael Moody
Lisa Havens
Dan Moody
Rollie Hinckley
Nathan Ducharme
Nicole Razar
Steven Heffer
Jamie Razar
Danielle Blacet-Hyden
Laurie Henry
Art & Millie Moody
Anonymous