LFS Hardship Grants

Living with Li-Fraumeni syndrome (LFS) can be financially devastating to a family. Extensive annual surveillance to detect cancer as early as possible when it is most treatable, specialized treatments and equipment should LFS cancers occur, and long distance travel to cancer centers – it all adds up. Insurance may not cover enough – or any – of the costs for care. The continual “cancering” that plagues these families often results in extended periods of lost wages, leaving them to choose between paying monthly bills or managing cancer.

To help LFS families defray these steep costs, in 2021 Living LFS established the LFS Hardship Grant program. Grants are awarded twice a year: every LFS Awareness Day, March 20, and October 5 in honor of Living LFS founder Jennifer Mallory (March 20, 1976 – October 5, 2020). Sign up for our mailing list for hardship grant updates. Help us help more LFS families: Donate.

Our Impact

LFS Hardship Grants Awarded

$ 0

Dollars Awarded

2023

47 LFS Hardship Grants Awarded – $47,000 total

October 2023

Pledged: (5) $1,000 grants – $5,000 total
Awarded: (9) $1,000 grants – $9,000 total!

The next round of LFS Hardship Grants will be awarded on Li-Fraumeni Syndrome Awareness Day, March 20, 2024. The grant application window will most likely be open from February 6 – March 6, 2024.

March 2023

Pledged: (10) $1,000 grants – $10,000 total

Awarded: (38) $1,000 grants – $38,000 total!

($11,000 of that paid directly to 11 applicants by an anonymous donor!)

2022

41 LFS Hardship Grants Awarded – $41,000 Total

October 2022

Pledged: (5) $1,000 grants – $5,000 total

Awarded: (10) $1,000 grants – $10,000 total! Read more details

March 2022

Pledged: (12) $1,000 grants – $12,000 total

Awarded: (31) $1,000 grants – $31,000 total!

($9,000 of that paid directly to 9 applicants by an anonymous donor!)

2021

52 LFS Hardship Grants Awarded – $36,320 Total

October 2021

Pledged: (5) $2,000 grants – $10,000 total

Awarded: (9) grants – $13,530 total! Read more details

March 2021

Pledged: (10) $530 grants – $5,300 total

Awarded: (43) $530 grants – $22,790 total!

($11,660 of that paid directly to 22 applicants by an anonymous donor!)

Grant Recipients

When I got pregnant with my now 1 year old, life just started to unfold in ways that I never thought would be “my life”. I found out that myself and my baby had LFS and this took me down a path of cancer and surgery after being the girl who always said “that won’t happen to me”. Thank you to Living LFS for gifting me and my little guy this grant during this time where life seems to have been nothing but downfalls. Getting a call last night that we would be receiving this grant had me crying. I haven’t been able to work between surgery and 3 different types of cancer just in the last year. I can not express how grateful and blessed I feel. Thank you. Thank you a million times. I hope you know how you truly help others by doing this. You are a blessing.

Thank you so much, Living LFS, for this hardship grant! I literally received the call the same day I had traveled four hours for my first full body MRI and had to pay $895 out of pocket. My son is getting better everyday and I am just starting this journey after my diagnosis of breast cancer. I cannot thank you enough for your support. It is beyond appreciated.

I am a recipient of one of Fall $2000 LFS Hardship Grants. I applied because I was at a point where the hardships that we were experiencing really started to affect my ability to focus on the things that are really important, and that is each day my son is here and healthy. Even though we are struggling with health again, receiving this grant is such a blessing and something that I will never forget because now I can take a breath, and focus on my child and his health rather than having the weight of the expenses on my shoulders. When you are in a true hardship, one that affects you to the core. The receipt of a blessing such as this grant is one that will be cherished and remembered always. What a tremendous way to recognize those that struggle with this LFS and the trials and tribulations that they go through by helping when it is least expected. Without the support of livinglfs.org and the Li-Fraumeni Facebook support group I would be completely lost navigating this LFS world I call my normal. God bless and thank you so very much from the bottom of mine and my son's heart

With Gratitude to Our Donors

None of these LFS Hardship grants would have been possible if it wasn’t for all of the people who donated to Living LFS. This is just a partial list. Special thanks to an anonymous donor who has funded over $20,000 in LFS Hardship Grants, paid directly to applicants. We cannot thank you enough.

Judi Heitz
Valerie Pettijohn
Snarky Cancer
Wren Valley Apparel
Rachel & Philip Mondy
Debbie Leanne Photo
Susan Frary
Karen Stivers
Brenda Courtney
Greg Harper
Trishia Shelly-Stephens
Inge Vandormael
Lisa Wickens
Sparklerific
Andi Last
Ginny Davis
Robyn Hamilton
Lon & Linda Humpert
Laurie Weaver Quadracci
Susan Peterson Frary
Ilonka Dee
Emily Carriveau
Nancy Lehman
Maureen Gelches
Aaron Bandstra
Kate Fritzsche

Connie Bowe
Kellie Scroggie
Nina Christina
Wendy Kohlmann
Monica King-Fontenot
Melissa Laplante
Carly Grant
Tori Klein
Joshua C Hubbard
Shana Ramesh
Louis Hudon
Kelly Agbay
Eric Larsen
Eni Bica
Carl Birdman Myers
Georgia Cook
Dan Alosco
Claire DeMaio
Dottie Collins-Guy
Ana Paulina
Debbie Harper
Erinne Matte-Daniels
Ben Collins
Brooke Clay
Patricia Reed
Katerina Papoutsis
Craig Kirkpatrick
Barb Kirkpatrick
Anne Bauer Peytavin
Casey Ford
Jennifer Mills
Barbara Goetke Mills
Laura Kostura
Angie Robinson
Joe Cardia
Lisa Nahill
Michelle Potter
Cindy Shankar
Janis Williams
Becki Dunton
Michael Moody
Lisa Havens
Dan Moody
Rollie Hinckley
Nathan Ducharme
Nicole Razar
Steven Heffer
Jamie Razar
Danielle Blacet-Hyden
Laurie Henry
Art & Millie Moody
Anonymous