"Losing my voice does not mean I won't be heard." - Jennifer Mallory

Today, October 5, 2021, is one year since Living LFS founder Jennifer Mallory passed from metastatic breast cancer. We all miss Jen and her presence deeply. Every day.

Jen's passion and her goal was helping others to live with Li-Fraumeni syndrome. 

By funding $13,530 in LFS hardship grants, awarded today to nine families struggling with the costs of living with Li-Fraumeni syndrome, the Living LFS community has ensured that Jen's passion lives on, and her goal is being realized.

Through all of us, Jennifer Mallory's voice continues to be heard. Thank you.

Jennifer Mallory, Living LFS Founder, 1976-2020

Living LFS committed to provide $2,000 each to five LFS families this October 5, for a total of $10,000 in Fall 2021 LFS hardship grants. As they always do, the LFS community came through with even more support for those in need. 

Four additional grants were awarded today, totaling $3,530, thanks to Snarky Cancer, Treva Vetter and the EveryLife Foundation, Circle of Hope, Inc., and Brandon Hamm’s family and loved ones. 

Read on for the stories of both the recipients and some of the donors. For their privacy, recipients’ stories are anonymous, but we welcome recipients to comment below and to share their experiences if they wish.

The LFS hardship grant program is only possible through donations from supporters like you. Please donate to the next round of LFS hardship grants, to be awarded on LFS Awareness Day, Jen's birthday, March 20, 2022. We thank you. 

$2,000 LFS HARDSHIP GRANTS

Recipients' Stories

ADDITIONAL GRANTS

$1000 Snarky Cancer sarcoma grant

As a direct result of their experiences living with LFS, cancer, and specifically sarcoma, Living LFS founding member Trishia Shelly-Stephens, her son Tre Shelly, and her husband Mike Stephens created Snarky Cancer as a family business, and as a way to give back. We are so grateful to Snarky Cancer for contributing a $1,000 LFS hardship grant, specifically for a recipient fighting sarcoma. This is the recipient’s story: 

$1000 Treva Vetter/EveryLife Foundation Rare Disease Week grant 

In July, the EveryLife Foundation hosted their 10th annual Rare Disease Week on Capitol Hill. As part of the event, attendees earned points for various activities. Living LFS representative Treva Vetter was among the top 50 point earners, and she chose Living LFS to receive a $1,000 donation in her name. We thank Treva for allowing us to pass this on as an LFS hardship grant. This is the recipient’s story:

$1000 Circle of Hope breast cancer grant

Circle of Hope in Duluth, MN, is a 501(c)(3) non-profit organization that helps breast cancer patients who struggle financially from a breast cancer diagnosis. Living LFS sends our deepest thanks to Secretary and Coordinator Peggy Anderson and all at Circle of Hope for contributing a $1,000 LFS hardship grant, specifically to be awarded to a breast cancer patient. This is the recipient’s story: 

$530 Brandon Hamm grant

Earlier this year, 21 year old Brandon Hamm passed away after battling Li-Fraumeni syndrome and metastatic osteosarcoma. His family kindly asked for donations to Living LFS in Brandon’s name. A portion of the funds were earmarked by their donors for the 2022 Jennifer Mallory Family Camp. The other portion, $530, has been awarded as an LFS hardship grant. We are grateful to the Hamm family and their loved ones. This is the recipient’s story:

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Again, thank you to ALL of the donors from the Living LFS community who have made these LFS hardship grants possible. The next round of grants will be awarded on Li-Fraumeni Syndrome Awareness Day, March 20, 2022.

Donate to 2022 LFS Hardship Grants

4 Responses

  1. I am a recipient of one of Fall $2000 LFS Hardship Grants. I applied because I was at a point where the hardships that we were experiencing really started to affect my ability to focus on the things that are really important, and that is each day my son is here and healthy. Even though we are struggling with health again, receiving this grant is such a blessing and something that I will never forget because now I can take a breath, and focus on my child and his health rather than having the weight of the expenses on my shoulders. When you are in a true hardship, one that affects you to the core the receipt of a blessing such as this grant is one that will be cherished and remembered always. What a tremendous way to recognize those that struggle with this LFS and the trials and tribulations that they go through by helping when it is least expected. Without the support of livinglfs.org and the Li-Fraumeni Facebook support group I would be completely lost navigating this LFS world I call my normal. God bless and thank you so very much from the bottom of mine and my sons heart.

  2. When I got pregnant with my now 1 year old, life just started to unfold in ways that I never thought would be “my life”. I found out that myself and my baby had LFS and this took me down a path of cancer and surgery after being the girl who always said “that won’t happen to me”. Thank you to LFS for gifting me and my little guy this grant during this time where life seems to have been nothing but downfalls. Getting a call last night that we would be receiving this grant had me crying. I haven’t been able to work between surgery and 3 different types of cancer just in the last year. I can not express how grateful and blessed I feel. Thank you. Thank you a million times. I hope you know how you truly help others by doing this. You are a blessing.

  3. Thank you so much, LFS, for this hardship grant! I literally received the call the same day I had traveled four hours for my first full body MRI and had to pay $895 out of pocket. My son is getting better everyday and I am just starting this journey after my diagnosis of breast cancer. I cannot thank you enough for your support. It is beyond appreciated.

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