by Aimee I used to have a lot of issues with the term “previvor” because it frightened me. It was an acknowledgement that I was
A girl struggles to decide whether to be tested for the genetic mutation linked to her father’s cancer. Would it be better not to know
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
I found out I was pregnant with my first baby three days after I was diagnosed with Li-Fraumeni Syndrome. My husband and I had been
I and my one year old baby both have LFS. Late last Fall my baby was diagnosed with Adrenocortical Carcinoma. Since then we have been
Hello. My name is Taylor. I am twenty years old and I was diagnosed with Li-Fraumeni Syndrome in December of 2021. When I was seven
My name is Hailey and in May of 2020, I found out I was pregnant with my now 1 year old. I also found out
I had adrenal cancer as an infant in 1985, so the word ‘survivor’ has been part of my vocabulary my whole life. Even though I was too young to
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
