I have many phrases that I use to keep myself emotionally grounded. Some of these are not likely to be statements that others would find helpful: “It is
My husband laughs that I often mix up my idioms. It’s not rocket surgery I tell him. A few years ago I had a sarcoma
The day was warm, which was quite surprising because Bethesda had just gotten 7 inches of snow the day before. My flight out of Greensboro
by Ann Ramer I had the opportunity to visit with Dr. Mark Robson this week when I travelled to NYC to follow up with my
I am fairly new to LFS, by many peoples standards, only learning of my family’s genetic problem in 2011. We all understand that this knowledge is life
Registration is open for the Mutant Mixer on 10/17 and the Meeting on 10/18 CLICK HERE TO REGISTER Please Join the members of Living LFS
The other day in the Facebook Family and Friends Support Group, a woman from Brazil shared that while her brother tested positive for LFS, he
There have been 2 conferences in the past 5 years that included people living with LFS. As inspiring as it was to learn more about
Living with LFS is a full time job. Many of us could be awarded honorary degrees in genetics, medicine and could talk for hours about
Michael Peterson was famous in the LFS support group for saying- “Cancer can kiss my ass.”And it can. There is no one way to deal
