Category: Personal Stories

Tumor Humor- Screwed Again

Living with LFS can leave you feeling like you’ve lost your mind. Keeping up with doctor’s appointments, screenings, checking out weird lumps or bumps and

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Battling the Sharks

I have many phrases that I use to keep myself emotionally grounded.  Some of these are not likely to be statements that others would find helpful:  “It is

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Living LFS: Research with Ann

I am fairly new to LFS, by many peoples standards, only learning of my family’s genetic problem in 2011.  We all understand that this knowledge is life

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