March 20th is Li-Fraumeni Syndrome Awareness Day
March is Li-Fraumeni Syndrome Awareness Month
What is Li-Fraumeni Syndrome?
LFS AWARENESS EVENTS AND ACTIVITIES
Each Li-Fraumeni Syndrome Awareness Month, the LFS community spreads the word about LFS through local news media and shares their personal LFS stories on social media.
On LFS Awareness Day, March 20th, the community gathers online to learn from informative webinars, to play fun trivia games, to celebrate our LFS Hardship Grant awardees, to win prizes, to share and laugh and cry with their LFS peers, and to commemorate the birth anniversary of Living LFS founder Jennifer Mallory. Watch all LFS Awareness Day videos.
HOW YOU CAN HELP RAISE LI-FRAUMENI SYNDROME AWARENESS
DOWNLOAD the rack card or save the image of the rack card. Share it on social media and with your friends, family, loved ones, care providers, or the oncology department at your local hospital!
WEAR your official LFS Awareness Day t-shirt on March 20! Post your photos on social media with the hashtags #IAmLivingLFS #LFSawarenessday #LFSawarenessmonth #LFSawareness #lifraumenisyndrome and tag Living LFS on Facebook, Instagram, Twitter and LinkedIn.
GRANTS: Anyone who has dealt with cancer and LFS knows how difficult it can be to ask for help when you need it. LFS Hardship Grants are awarded every March 20th and October 5th to families and individuals facing financial hardships due to Li-Fraumeni syndrome. The grant dollar amounts and the number of grants awarded are determined by donations received!
REACH OUT to local media to be interviewed and share your story for LFS Awareness Day and LFS Awareness Month. Share our press release!
REMEMBERING: LFS PATIENT ADVOCATES
Jennifer Mallory and John Berkeley were key drivers in ensuring that those living with Li-Fraumeni syndrome would never fight LFS alone. They are both deeply missed, and we are grateful for all of their contributions to the Li-Fraumeni syndrome patient community.