ONLINE SUPPORT: The Short Version
Living LFS is active and public on Facebook, Instagram, Twitter and LinkedIn. We welcome you to like, follow, comment, share, repost, regram, retweet and become a part of any of our public online communities that suit your preferences.
We have a private/closed Li-Fraumeni Syndrome Support Group on Facebook specifically for those living with LFS, and a private/closed Li Fraumeni Syndrome Family and Friends Facebook group for those who supporting someone living with LFS. Both groups provide a private place to ask questions and share experiences. Please read on for further information.
Facebook Page & Support Groups: More Details
Li-Fraumeni Syndrome Family And Friends is also a Facebook Closed Group. Only members of the group can see posts and news feed. This Closed Group allow a private place for those who know and love those affected by LFS to get support and share stories. We encourage friends, family members, clinicians and anyone touched by LFS to ask to join the group. Behind every mutant is a terrific support system and we are most grateful for this. The group is currently managed by Living LFS.