Learning Li-Fraumeni Syndrome Podcast

Through interviews with everyone from genetic counselors and doctors to supporters and patients, the goals of this podcast are answering questions about Li-Fraumeni syndrome, providing useful resources, and sharing stories of hope and experience by talking with people who are living LFS every day.


December 4, 2022

Guest: Levi Ware, President, Co-Founder and Executive Director, Melodic Caring Project

Can music therapy change our lives? Living LFS recently partnered with Melodic Caring Project, a non-profit organization that connects artists and patients worldwide, bringing hope, connection, and the power of music to people battling illnesses like cancer. In this episode of Learning Li-Fraumeni Syndrome, Melodic Caring Project President, Co-Founder, and Executive Director Levi Ware shares stories of how Melodic Caring has uplifted patients in need through the organization’s core programs, in collaboration with artists from Flo-Rida to David Crosby to Weird Al Yankovic. Levi also talks about the value of music therapy and explains how to sign up or nominate someone to be a Melodic Caring Rockstar.

ONE-ON-ONE CANCER SUPPORT FOR THE LFS COMMUNITY | Learning Li-Fraumeni Syndrome Episode 3

January 15, 2021

Guest: Jackie Herigodt, Director of Programs and Outreach, Imerman Angels

Imerman Angels’ mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there. They envision a world where cancer is not a solitary experience.

In this episode of the Learning Li-Fraumeni Syndrome podcast, Imerman Angels’ Director of Programs and Outreach, Jackie Herigodt, talks about the new partnership between Imerman Angels and Living LFS, she tells about the history and purpose of Imerman Angels, the importance of peer-to-peer psychosocial support as a part of cancer treatment, and the process for becoming a Mentor Angel or a support-seeker through Imerman Angels. Become a Mentor Angel.

A First: LFS On The Big Screen | Learning Li-Fraumeni Syndrome Episode 2

November 16, 2017

Guest: Dan Gordon, Co-writer and Producer of the film, Let There Be Light

Li-Fraumeni Syndrome Basics: Learning Li-Fraumeni Syndrome Episode 1

November 9, 2017

Guest: Wendy Kohlmann, MS, CGC Licensed Genetic Counselor, University of Utah Huntsman Cancer Institute

In this first episode of Learning Li-Fraumeni Syndrome, licensed genetic counselor Wendy Kohlmann from The University of Utah’s Huntsman Cancer Institute answers many of the basic questions someone might have about Li-Fraumeni Syndrome, an inherited predisposition to developing cancer caused by a mutation of the TP53 gene.