by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love”
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
Choroid Plexus Brain Tumors are highly associated with Li-Fraumeni Syndrome. The choroid plexus is within each ventricle in the brain; a series of vessels and tissue
NEW: In 2021, mark Li-Fraumeni Syndrome Awareness Month with us throughout the month of March! $530 LFS hardship grants to be awarded on Li-Fraumeni Syndrome
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
In April 2018, Fannie attended the LFSA REACH International Conference in Toronto. She shares her experience and the impact it has made on her coping
A few years ago, Brandi shared her experience of sarcoma with us. In 2009, she was only 29, 5 months pregnant with her daughter when
Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can
In April 2018, Living LFS awarded 14 travel scholarships to members of our support group to help them attend the LFSA 2018 REACH International LFS
