Treva Vetter is a Registered Nurse, survivor, and patient advocate who is living with Li-Fraumeni Syndrome. Treva represented Living LFS during the Virtual Rare Disease
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
FALL 2021 HARDSHIP GRANT APPLICATION WINDOW NOW OPEN On October 5, 2021, Living LFS will award five $2,000 hardship grants to qualified applicants experiencing financial
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
by Fannie Lemay – I was always lucky that way. I was never preoccupied by how I looked. I considered myself average looking and figured
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
The genetic mutation that causes Li-Fraumeni syndrome has the potential to unlock cancer FOR IMMEDIATE RELEASE: February 5, 2021 (download release as PDF) East Coast:
The TP53 gene is a tumor-suppressor gene, often called “the guardian of the genome.” In this post, Living LFS member Ilonka Dee shares how research
Living LFS is working to promote research opportunities for our families with LFS. A new study that is currently enrolling is called the Li-Fraumeni &
For those of you who are new, welcome, we are so happy you’ve joined us! For those who have been with us, we’re so glad
