The Early Detective: Don’t let cancer define you
I had adrenal cancer as an infant in 1985, so the word ‘survivor’ has been part of my vocabulary my whole life. Even though I was too young to
I had adrenal cancer as an infant in 1985, so the word ‘survivor’ has been part of my vocabulary my whole life. Even though I was too young to
“Losing my voice does not mean I won’t be heard.” – Jennifer Mallory Today, October 5, 2021, is one year since Living LFS founder Jennifer
Treva Vetter is a Registered Nurse, survivor, and patient advocate who is living with Li-Fraumeni Syndrome. Treva represented Living LFS during the Virtual Rare Disease
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
$36,320 in hardship grants awarded in 2021! Living with a genetic disease like Li-Fraumeni Syndrome (LFS) has devastating physical and emotional costs and losses. To
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
by Fannie Lemay – I was always lucky that way. I was never preoccupied by how I looked. I considered myself average looking and figured
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
The genetic mutation that causes Li-Fraumeni syndrome has the potential to unlock cancer FOR IMMEDIATE RELEASE: February 5, 2021 East Coast: Greg Harper President, Living
Support LFS Hardship Grants by ordering an LFS Awareness Day Elephant Shirt! But… why elephants? The TP53 gene is a tumor-suppressor gene, often called “the