The TP53 gene is a tumor-suppressor gene, often called “the guardian of the genome.” In this post, Living LFS member Ilonka Dee shares how research
When I was diagnosed with Li-Fraumeni syndrome in 2016 and then three weeks later with stage 3 brain cancer, I felt lost and desperate. I
I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love”
In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite,
A woman with Li-Fraumeni Syndrome has almost a 100% chance of getting cancer in her lifetime. Although most of this risk is due to Breast
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
Choroid Plexus Brain Tumors are highly associated with Li-Fraumeni Syndrome. The choroid plexus is within each ventricle in the brain; a series of vessels and tissue
by Andi Last, Living LFS Secretary – I am part of a group of people with a rare genetic condition called Li-Fraumeni Syndrome (LFS). You’ve
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
