CLICK TO REGISTER NOW!
What to Expect
2 pm – Check in begins
5pm – Opening remarks
6pm – Dinner
Sat, Aug 24 & Sun Aug 25:
Two full days of breakout sessions and fun (see below!)
Mon, Aug 26:
9am – Final remarks
11am – Check out
Full schedule to be released soon!
Breakout Sessions:
- A Q&A and book signing with Lawrence Ingrassia, author of A Fatal Inheritance (one free book for each family/group – supplies limited!)
- Genetics 101
- Coping with Mental Health
- Balancing Food, Body and Movement
- Grief and Bereavement
- Medical and Psychosocial Research
- Nutrition Guidelines for Cancer
- Caregivers with and without LFS
- 15 Minutes One on One with a Genetic Counselor
- Mindful Self-Compassion for Adults
- Adolescents and Young Adults Ages 15-25
- Medical Decision-Making
- The League of Extraordinary Gentlemen (guy talk!)
Activities:
- Wine and Paint Evening (21+)
- Archery
- Odyssey Course
- Multisport Challenge
- Hiking
- Low Ropes
- Orienteering
- Family Canoeing
- Ziplining
- Bracelet making
- Arts and Crafts
- Swimming
- Memorial Walk
- Campfire & Movie
- Talent Show
Kids at Camp
To ensure that camp is a wonderful experience for all attendees, the following rules have been established for families with children:
1. Children must be 5 years of age or older to attend family camp
2. All attending parents of children under the age of 18 may be asked to do a 90 minute child-minding shift during some camp events and activities; however, parents are responsible for the behavior of their own children at all times
3. Some breakout sessions and events at family camp are wholly inappropriate for children. For the benefit of all attending these events, parents are responsible for ensuring their kids are involved in other camp activities during these times
4. If a child/children break, destroy, or vandalize any property owned by the camp venue or other attendees, the family/families involved may be held financially responsible
5. If Living LFS board members receive multiple complaints about a child or family, the family may be asked to leave and/or may not be invited to future camps
CAMP SPONSORS WANTED
While Living LFS funds camp, as a rare disease we have a difficult time attracting donors’ attention. Their sponsorship might greatly enhance the scope and impact of our camp and all we do.
Many who might attend camp are unable due to travel costs. Our badly needed annual hardship grants could be more generous or reach others in need. Should you have access to potential donors, we hope you will help tell our story and perhaps share our sponsorship menu with them – click here to download.
We have a moving story to tell, and you might be surprised how many folks would find satisfaction in helping. If you have a direct connection and are uncomfortable telling the story, one of our board members would be happy to help with the conversation. Email us at hello@livinglfs.org
