- Special thanks to our generous anonymous donor, who provided $1,000 grants directly to 11 families with children with LFS this year. Since Li-Fraumeni Syndrome Awareness Month was established in 2021, this donor has given $31,660 to LFS families in need, and we couldn’t be more grateful 💙
- Heartfelt thanks to Barb and Craig Kirkpatrick for donating $5,000 toward LFS Hardship Grants for their third year in a row
- Our gratitude to the Addie Brady Foundation for funding five $1,000 grants this year, giving a total of $11,660 since 2022
- And thanks to every single donor, who contributes anything from $5.30 to $5,300, for making it possible for Living LFS to provide LFS Hardship Grants twice a year to those with LFS who really need the help!
The LFS community also helped their own by purchasing and showing off their LFS Awareness Day 2023 t-shirts on March 20th! Designed by artist and Living LFS board member Inge Vandormael, and printed and sold by Living LFS founding member Trishia Shelly-Stephens‘ Snarky Cancer, proceeds from t-shirt sales funded a $1,000 LFS Hardship Grant. You can still order t-shirts and other Living LFS merchandise to support the next round of LFS Hardship Grants, to be awarded on October 5, 2023!
- “Cancer” is the first thing that pops into your mind for every stinking body ache or pain.” Julie submitted this most relatable quote
- “A friend describes a basal cell cancer removal as if he was waterboarded and you envision a knee scrape” Tom putting things into perspective
- “When you horrify people with your cancer jokes” Edward shows that sometimes you just have to laugh
- Taylor: When you get a new doctor and have to spend half an hour going through your very depressing family history. And spend the next half hour explaining LFS
- Linda: When your sarcoma oncologist greets you “ So great to see you. You are the longest-living person I have seen with this!”
- Jo: When “Brazilian” as a descriptor means something very different
- Lisanne: When you share your best colonoscopy-life-hacks to your brother
Thank you all once again for a banner March – our third annual Li-Fraumeni Syndrome Awareness Month! And for making March 20th LFS Awareness Day so successful and so beneficial to the LFS community. See you next year!