Exciting things are happening at Living LFS! We have officially incorporated as an organization and are working towards filing for non profit status.
As our first official act as Living LFS- we are organizing a Mutant Meeting in Portland Oregon!
Please join us October 17-18 at the Portland Airport Embassy Suites to meet others who are Living LFS. There is a limited block of rooms available at a special reduced rate for Mutants. Please reserve your room before September 1 to take advantage of this great rate. ($125/ night- includes airport shuttle, free hot breakfast, snacks and drinks in the evening and close proximity to the light rail.)
Reservations can be made by calling 1-503-460-3000 and asking for the Living LFS rate or online at
There will be a Meet n Greet Friday Evening on the Party Deck starting at 6:00 pm. This coincides with the Manager's reception- which means- free snacks and beverages!
Saturday Morning will be an informal yet structured meeting in the Cedar Room III from 8am-1pm. The Board Members of Living LFS are excited to spend time learning about you, talk about our goals and spend time talking about Li Fraumeni Syndrome and some of the issues we face. There will be ample time to share stories and ideas of how we can work together to make a difference for our LFS community.
There will be plenty of time to see Portland- together or on your own Saturday afternoon!
Do you have a story you would like to tell? We'd love to hear from you and how you are Living LFS. Please feel free to contact us via email if you have any questions, if yow want to learn more about Living LFS or would like to be a part of this wonderful organization that is Fighting Cancer, Supporting Mutants- LivingLFS@gmail.com
or check out our new page on Facebook for more event details!! https://www.facebook.com/LivingLFS