Four Stories of LFS and Pediatric Adrenocortical Carcinoma, Rare Hope
-Adrenocortical tumors are very rare, seen in about 0.2 percent of all childhood cancers.-More girls are affected by adrenocortical carcinoma than boys.-It is usually seen
-Adrenocortical tumors are very rare, seen in about 0.2 percent of all childhood cancers.-More girls are affected by adrenocortical carcinoma than boys.-It is usually seen
Brandi was a young woman about to embark on the crazy journey into parenthood when she was sideswiped with a rare cancer diagnosis. Sarcoma. Only
Living with LFS can leave you feeling like you’ve lost your mind. Keeping up with doctor’s appointments, screenings, checking out weird lumps or bumps and
Cancer is a multi-step process. For every person that says “such and such” causes cancer, there is another person who says – I have eaten/smoked/used/been
I have many phrases that I use to keep myself emotionally grounded. Some of these are not likely to be statements that others would find helpful: “It is
My husband laughs that I often mix up my idioms. It’s not rocket surgery I tell him. A few years ago I had a sarcoma
The day was warm, which was quite surprising because Bethesda had just gotten 7 inches of snow the day before. My flight out of Greensboro
by Ann Ramer I had the opportunity to visit with Dr. Mark Robson this week when I travelled to NYC to follow up with my
I am fairly new to LFS, by many peoples standards, only learning of my family’s genetic problem in 2011. We all understand that this knowledge is life
Registration is open for the Mutant Mixer on 10/17 and the Meeting on 10/18 CLICK HERE TO REGISTER Please Join the members of Living LFS