Blog
Kortne's Story about Learning to Live with LFS
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
Mental Breaks and Living LFS: Fannie Shares Her Conference Experience
In April 2018, Fannie attended the LFSA REACH International Conference in Toronto. She shares her experience and the impact it has made on her coping
Sarcoma in Li-Fraumeni Syndrome 2018
1969, SOFT TISSUE SARCOMAS, BREAST CANCER- A FAMILY SYNDROME? In 1969, Dr. Joseph Fraumeni and Dr. Frederick Li were working at the National Institutes of
Just Keep Sluggin! Brandi's Sarcoma Update.
A few years ago, Brandi shared her experience of sarcoma with us. In 2009, she was only 29, 5 months pregnant with her daughter when
Thank You from Jen.
5 years ago, I learned my Breast Cancer metastasized. I was terrified, angry, but not surprised. A close group of friends I met through the
Connecting the Beautifully Twisted: D'Ana Reed International Scholarship
One Year ago today, we lost a good friend. D’Ana Reed would poke in on the Facebook support group, but she preferred to be with
Perspective:P53 and Me in the New England Journal of Medicine
Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can
A Kick-Ass Kinda Community
In April 2018, Living LFS awarded 14 travel scholarships to members of our support group to help them attend the LFSA 2018 REACH International LFS
Living LFS: Together in Toronto 2018
Living LFS was fortunate to attend the Li-Fraumeni Syndrome Association’s REACH 18 International Symposium in Toronto, Canada from April 25-29. Board members and support group
LFS in WOMEN
Women with Li-Fraumeni Syndrome have close to 100% chance of developing cancer in their lifetime. About half of all these cancers develop before age
Mosaic Mutants
Genetics are very complicated. There are so many factors that influence how we become who we are on the cellular level and beyond. A good
Mutants Vs. Radiation: Trying to Understand Radiation in LFS
Generally, everyone should be cautious around radiation, but also realize radiation is all around us. When we are diagnosed with LFS, one of the first
