Hello. My name is Taylor. I am twenty years old and I was diagnosed with Li-Fraumeni Syndrome in December of 2021. When I was seven
My name is Hailey and in May of 2020, I found out I was pregnant with my now 1 year old. I also found out
Make a $530 donation to support Living LFS Hardship Grants and you can own this one-of-a-kind mandala, currently being hand-drawn by the illustrious Inge Vandormael
Living LFS will celebrate Li-Fraumeni Syndrome Awareness Month throughout March FOR IMMEDIATE RELEASE: February 6, 2022 Greg Harper President, Living LFS, Inc.greg@livinglfs.org Andi Last Vice
I had adrenal cancer as an infant in 1985, so the word ‘survivor’ has been part of my vocabulary my whole life. Even though I was too young to
“Losing my voice does not mean I won’t be heard.” – Jennifer Mallory Today, October 5, 2021, is one year since Living LFS founder Jennifer
Treva Vetter is a Registered Nurse, survivor, and patient advocate who is living with Li-Fraumeni Syndrome. Treva represented Living LFS during the Virtual Rare Disease
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
$36,320 in hardship grants awarded in 2021! Living with a genetic disease like Li-Fraumeni Syndrome (LFS) has devastating physical and emotional costs and losses. To
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
