Getting a Li-Fraumeni Syndrome Diagnosis
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
A few years ago, Brandi shared her experience of sarcoma with us. In 2009, she was only 29, 5 months pregnant with her daughter when
Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age
James Higgins lost his dad, his sister and 2 daughters to LFS cancers. Cancer came after him twice. This is his story and how he
Almost three years ago, the Peytavin family’s journey with cancer began. It is often said that when a family member gets cancer, the family gets
Many of us met Andrea at an LFS conference in Boston a few years ago. She and her mother Kim are well known within our
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
[pdf-embedder url=”https://livinglfs.org//wp-content/uploads/2016/01/LFS-Final-Project-Jennifer-Mallory-copy.pdf”] A few months ago, I had the opportunity to take an online course entitled Introduction to the Science of Cancer offered by the