Tag: story

Finding Support for LFS

Living with LFS is a full time job. Many of us could be awarded honorary degrees in genetics, medicine and could talk for hours about

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Tribute to Sarah

  Tribute to Sarah by Jen Kaufman My cousin Sarah died on the first day of 2014.  She fought breast cancer with Li Fraumeni Syndrome

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Roberta's Story

      A few days ago my daughter texted a request to me.  She set up a blog as a compendium for the Facebook LFS Support

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