Blog

March is Li-Fraumeni Syndrome Awareness Month: Families With Devastating Cancer Condition to Receive Financial Relief
FOR IMMEDIATE RELEASE: February 21, 2025 Contact: Andi Last President, Living LFS, Inc. andi@livinglfs.org download as PDF March 2025 is the fifth annual Li-Fraumeni Syndrome


Let's Turn $40K into $80K for Families Battling Cancer
As Li-Fraumeni Syndrome Awareness Month approaches in March, we are gearing up for our fifth year of awarding LFS Hardship Grants on March 20th: LFS
Award-Winning Journalist and Author Lawrence Ingrassia to Join Family Camp for Those Impacted by Genetic Cancer Disorder
download as pdf FOR IMMEDIATE RELEASE: July 24, 2024 Non-profit organization Living LFS is excited to welcome author Lawrence Ingrassia to its upcoming family camp
Families Facing Rare Cancer Syndrome to Gather for Empowering Camp Experience with Acclaimed Author
download as pdf FOR IMMEDIATE RELEASE: June 17, 2024 Living LFS, a non-profit supporting families with Li-Fraumeni syndrome (LFS), announces its Jennifer Mallory Family Camp



Families With High Cancer Risk Get Financial Relief During Li-Fraumeni Syndrome Awareness Month
download as PDF FOR IMMEDIATE RELEASE: February 23, 2024 Andi LastPresident, Living LFS, Inc.andi@livinglfs.org March 2024 marks the fourth annual Li-Fraumeni Syndrome Awareness Month, and
Port-a-Cath Pros and Cons: Should You Get a Port?
by Dr. James Lowe I am the father of a Li-Fraumeni syndrome son who died from recurrent medulloblastoma 3.5 years ago. I also am an


2023 Year in Review
It’s time to look back with you and celebrate all that we achieved together for the Li-Fraumeni syndrome community in 2023: Let’s Make 2024 Strong!


Sex After Cancer: Survivorship and Intimacy
After treatment for cancer, it’s not uncommon to experience vaginal dryness or vaginal atrophy, incontinence, menopause symptoms, and significant hormonal and emotional changes. With a


What is Breast MRI Like?
– by Andi Last Take off my clothes, put on the hospital gown, get a needle in my arm, the nurse misses the vein, try


Help Us Fill the Gap Left by Amazon Smile
$3,947.58. That’s how much money went into the Li-Fraumeni syndrome (LFS) community, thanks to everyone who chose Living LFS as their Amazon Smile charity. We


May 3 is International LFS Awareness Day - 5/3 for p53
Info Cards for International LFS Awareness! We’re excited to make new resources available to spread awareness of Li-Fraumeni syndrome (LFS) on May 3, International LFS


Leader of the Band / A Family Affair
by Tom Connolly Donald Connolly, born 1915, passed from Astrocytoma September 3rd, 1958. He was my dad, and September 3rd, the day he died was