Contact DeAnn: DeAnn@LivingLFS.org
Hello, I'm DeAnn. I am a founding member of Living LFS and have been actively Living LFS since my diagnosis in 2002. Jennifer Mallory and Trishia Shelly-Stephens were the first two people I met who were like me. From a group on a website called MD Junction, to a Facebook group, then a randomly received and timely group chat request about swearing (I thank you every day, Ann Ramer), Living LFS was born to create a community for people with the same questions, concerns, and stories that I have. Before this wonderful, snarky, fun-loving, swearing-prone group, I felt isolated and without enough information to be proactive in my care. Through this community I have learned that LFS doesn't give me an expiration date. Over the past several years, I have developed the tools to be proactive in my screening and an active participant in my medical care. An initiative that is very important to me is consistent screening standards for everyone with LFS - regardless of age or gender. I learned that I had breast cancer in 2014, but because of rigorous screening it was found early. My hope for Living LFS is that we continue to foster a community and empower more people affected by this mutation to feel confident taking charge of their healthcare.