Brandi was a young woman about to embark on the crazy journey into parenthood when she was sideswiped with a rare cancer diagnosis. Sarcoma. Only
In 1967, Dr. Li, Dr. Fraumeni and Dr. Miller were chatting socially at the NIH. In the course of conversation, a particular family popped up.
Cancer is a multi-step process. For every person that says “such and such” causes cancer, there is another person who says – I have eaten/smoked/used/been
The day was warm, which was quite surprising because Bethesda had just gotten 7 inches of snow the day before. My flight out of Greensboro
Elephants are known for their great size, their tough skin and their impressive memory. They are social creatures where multiple family units come together to
When you are living with LFS, there are a lot of positives and negatives. Almost everyone is positive that they don’t want to be positive-
When my cousin Jen asked me to write a blog entry about living with Li-Fraumeni Syndrome, I had no idea what I would even write
Living with LFS can present challenges to the healthiest of family relationships. Many families with LFS have to find a way to adjust to their
Most people with Li Fraumeni Syndrome know they have a mutation. Some can even tell you at which codon their mutation occurred(don’t feel bad if
July is Sarcoma Awareness Month and there is a LONG way to go on the road to awareness. Mere weeks after having a Fibrohistiocytic Tumor
