Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
by Fannie Lemay – I was always lucky that way. I was never preoccupied by how I looked. I considered myself average looking and figured
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love”
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
Choroid Plexus Brain Tumors are highly associated with Li-Fraumeni Syndrome. The choroid plexus is within each ventricle in the brain; a series of vessels and tissue
by Andi Last – I am part of a group of people with a rare genetic condition called Li-Fraumeni syndrome (LFS). You’ve heard of the
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
