Blog
Thankful for Hope: Anniversaries, Lines, and Grey Hairs
I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As
Metformin and LFS
What is Metformin? Metformin is an oral medication that decreases the amount of sugar made in the liver, helps the body use sugar and recognize
Finding Fast Friends on Day One of Living LFS Family Camp
Authored By: Joni Allred After driving seven hours through a mostly empty land, we drove into the parking lot ready to be free of our
Pre-Camp Considerations
by Fannie Lemay I hate social gatherings. All of them. Parties, family reunions, dinners with more than four guests… just I don’t like it. Even
Working with LFS: When Your Brain Gets in the Way
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love”
Ilonka: Thoughts on LFS and Bravery
In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite,
Meet Katrina: BREAST CANCER, We Need More Than Pink.
A woman with Li-Fraumeni Syndrome has almost a 100% chance of getting cancer in her lifetime. Although most of this risk is due to Breast
Sandra's Story: Power from Knowledge and Hope
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
LFS Childhood Cancer Awareness: Choroid Plexus Carcinoma
Choroid Plexus Brain Tumors are highly associated with Li-Fraumeni Syndrome. The choroid plexus is within each ventricle in the brain; a series of vessels and tissue
5 Life Lessons From People Likely to Get Cancer
by Andi Last – I am part of a group of people with a rare genetic condition called Li-Fraumeni syndrome (LFS). You’ve heard of the
Kortne's Story about Learning to Live with LFS
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
Mental Breaks and Living LFS: Fannie Shares Her Conference Experience
In April 2018, Fannie attended the LFSA REACH International Conference in Toronto. She shares her experience and the impact it has made on her coping
