Almost three years ago, the Peytavin family’s journey with cancer began. It is often said that when a family member gets cancer, the family gets
On Wednesday, June 1st, 2016 the LFS family gathered at the Sheraton Capitol Square in Columbus, Ohio. This family includes people with TP53 mutations, those
Since Li-Fraumeni Syndrome cancers can pop up just about anywhere in the body and at any age, screening can be a bit of a challenge.
Many of us met Andrea at an LFS conference in Boston a few years ago. She and her mother Kim are well known within our
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
We have this question pop up frequently in our support group. What is mosaicism? On a very basic level, genetic mosaicism means a person has
It is difficult to imagine anything good coming from being diagnosed with Li-Fraumeni Syndrome. Yet as our members remind us, the good is in what
Lainie Jones has had five primary cancers, as well as Li-Fraumeni syndrome. But she’s stayed optimistic and refuses to let cancer control her life. Source:
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
A friend with LFS recently asked me about CoQ10 supplements and their anti cancer effects. Supplements are yet to be regulated, certified or otherwise cross
