I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As
In April 2018, Living LFS awarded 14 travel scholarships to members of our support group to help them attend the LFSA 2018 REACH International LFS
Almost three years ago, the Peytavin family’s journey with cancer began. It is often said that when a family member gets cancer, the family gets
On Wednesday, June 1st, 2016 the LFS family gathered at the Sheraton Capitol Square in Columbus, Ohio. This family includes people with TP53 mutations, those
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
Lisanne’s grandfather, three of her aunts, an uncle and a nephew – all of them died from cancer. Her daughter got a brain tumour at
-Adrenocortical tumors are very rare, seen in about 0.2 percent of all childhood cancers.-More girls are affected by adrenocortical carcinoma than boys.-It is usually seen
I had the good fortune of attending the Wyss Family Hereditary Brain Tumor Symposium in Columbus hosted by Nationwide Children’s Hospital. While most people would
