Portland Mutant Meeting Review
At 6pm on Friday, October 17th, 2014, mutants gathered in the Pine Room at the Embassy Suites in Portland, Oregon. As they munched on
At 6pm on Friday, October 17th, 2014, mutants gathered in the Pine Room at the Embassy Suites in Portland, Oregon. As they munched on
Registration is open for the Mutant Mixer on 10/17 and the Meeting on 10/18 CLICK HERE TO REGISTER Please Join the members of Living LFS
It’s HERE! Our first Living LFS Fundraiser! We designed a fun T-shirt that embraces our Mutanthood! Click on the picture or link below to go
Exciting things are happening at Living LFS! We have officially incorporated as an organization and are working towards filing for non profit status. As our
Living with LFS is a full time job. Many of us could be awarded honorary degrees in genetics, medicine and could talk for hours about
About LFS Printable pdf MDANDERSON LFS Printable Genetics Home Reference NIH American Society of Clinical Oncology(ASCO) LFS Printable .
One of the first questions mutants ask after diagnosis is- where should I go to receive the best care for LFS? Like everything when living
In the first memoir that even mentions Li Fraumeni Syndrome, author, blogger and LFSer Linda Zercoe takes us through a journey most LFSers can identify
Scanxiety is a very real emotion for many people with cancer and is especially prevalent in LFS. Anxiety causes shortness of breath- or is it
George Pantziarka George Pantziarka was only 2 years old when he was diagnosed with his first cancer. George was diagnosed again with cancer at the