Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
My name is Andi. That’s my husband Jay in the video with me. I’m the mutant, and he’s my warrior. In March 2015, at the
There really are no easy decisions where cancer is concerned. It’s usually an exercise in choosing between a tumor and a hard place. Some people
My Experience in My Second LFS Meeting by Yasmin Abdalla Shaaban So, I will talk a little about my personal perception on the last 3rd
It is difficult to imagine anything good coming from being diagnosed with Li-Fraumeni Syndrome. Yet as our members remind us, the good is in what
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
An important part of our mission is to raise awareness for and connect those who are living LFS. Just launched in November is our T-shirt
A year ago, a group of ladies who became friends in a support group for LFS met up to talk about what we could do
On February 14, the LFS community lost one of our family. Karly Hurst was well known within the LFS support group for her positive attitude
