Lainie Jones has had five primary cancers, as well as Li-Fraumeni syndrome. But she’s stayed optimistic and refuses to let cancer control her life. Source:
Research articles often are difficult for the average person to understand. One of our goals at living LFS is to help make this information easier
Mutants are sensitive to radiation. We avoid radiation when possible because ionizing radiation causes breaks in DNA that our mutant p53 is not good about
I had the good fortune of attending the Wyss Family Hereditary Brain Tumor Symposium in Columbus hosted by Nationwide Children’s Hospital. While most people would
Recently in the private Li-Fraumeni Syndrome support group, there was a question about the difference between PET scans and MRI’s and which was better. The
My husband laughs that I often mix up my idioms. It’s not rocket surgery I tell him. A few years ago I had a sarcoma
March is Colorectal Cancer Awareness Month. Although colon and rectal cancers(CRC) are not classified as core LFS cancers(Brain, Breast, Sarcoma and Adrenal), we are seeing
Rare Diseases Day started several years ago as an awareness campaign built on the idea that there is strength in numbers. There is power in
MDAnderson recently announced the beginning of a clinic for patients with Li-Fraumeni Syndrome at their cancer center in Houston, Texas. The Program is called LEAD-
http://www.dana-farber.org/uploadedFiles/Library/adult-care/treatment-and-support/centers-and-programs/cancer-genetics-and-prevention/li-fraumeni-whole-body.pdf
