In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite,
The Li-Fraumeni syndrome (LFS) community was represented in Washington DC February 28 – March 2, 2023, as Living LFS representatives Lon Humpert and Nicole Scoubes
Living with Li-Fraumeni syndrome (LFS) can be financially devastating to a family. Extensive annual surveillance to detect cancer as early as possible when it is
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
$36,320 in hardship grants awarded in 2021! Living with a genetic disease like Li-Fraumeni Syndrome (LFS) has devastating physical and emotional costs and losses. To
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
Support LFS Hardship Grants by ordering an LFS Awareness Day Elephant Shirt! But… why elephants? The TP53 gene is a tumor-suppressor gene, often called “the
History of Living LFS 2022 The 2022 Living LFS Jennifer Mallory Family Camp brings over 100 members of the LFS community together at Rocky Mountain
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
by Andi Last – I am part of a group of people with a rare genetic condition called Li-Fraumeni syndrome (LFS). You’ve heard of the
