Blog Posts

MRIs and Kids

Since Li-Fraumeni Syndrome cancers can pop up just about anywhere in the body and at any age, screening can be a bit of a challenge.

Read More »

Tumor Humor- Screwed Again

Living with LFS can leave you feeling like you’ve lost your mind. Keeping up with doctor’s appointments, screenings, checking out weird lumps or bumps and

Read More »

Battling the Sharks

I have many phrases that I use to keep myself emotionally grounded.  Some of these are not likely to be statements that others would find helpful:  “It is

Read More »

NIH LFS Study

The National Institutes of Health(NIH) is an agency of the United States Department of Health and Human Services. Located in Bethesda, Maryland, the NIH has

Read More »