by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can
In April 2018, Living LFS awarded 14 travel scholarships to members of our support group to help them attend the LFSA 2018 REACH International LFS
Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age
My name is Andi. That’s my husband Jay in the video with me. I’m the mutant, and he’s my warrior. In March 2015, at the
There really are no easy decisions where cancer is concerned. It’s usually an exercise in choosing between a tumor and a hard place. Some people
On Wednesday, June 1st, 2016 the LFS family gathered at the Sheraton Capitol Square in Columbus, Ohio. This family includes people with TP53 mutations, those
Kelilah Vardah gives us her thoughts on the Living LFS question: “Do some of you think you can beat cancer with pure will (and medicine
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
