Thank you for giving me an opportunity to introduce myself to this very important group. My name is Carly, and I have been a genetic
Registration is open for the Mutant Mixer on 10/17 and the Meeting on 10/18 CLICK HERE TO REGISTER Please Join the members of Living LFS
It’s HERE! Our first Living LFS Fundraiser! We designed a fun T-shirt that embraces our Mutanthood! Click on the picture or link below to go
Exciting things are happening at Living LFS! We have officially incorporated as an organization and are working towards filing for non profit status. As our
There have been 2 conferences in the past 5 years that included people living with LFS. As inspiring as it was to learn more about
Living with LFS is a full time job. Many of us could be awarded honorary degrees in genetics, medicine and could talk for hours about
There are so many symptoms that could be anything, a bug, a bacteria, allergies, or a brewing cancer. Headaches, a cough, lumps, fatigue could all
I was doing some work on my computer on Thursday evening when the notification on Facebook got my attention. I checked in, and saw some
Living with LFS can present challenges to the healthiest of family relationships. Many families with LFS have to find a way to adjust to their
A few days ago my daughter texted a request to me. She set up a blog as a compendium for the Facebook LFS Support
