My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age
Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
What is Genetic Counseling? Genetic Counselors are a group of professionals with a Master’s level degree who work in clinics, hospitals, public health and private
There really are no easy decisions where cancer is concerned. It’s usually an exercise in choosing between a tumor and a hard place. Some people
Lisanne’s grandfather, three of her aunts, an uncle and a nephew – all of them died from cancer. Her daughter got a brain tumour at
I had the good fortune of attending the Wyss Family Hereditary Brain Tumor Symposium in Columbus hosted by Nationwide Children’s Hospital. While most people would
I have many phrases that I use to keep myself emotionally grounded. Some of these are not likely to be statements that others would find helpful: “It is
My husband laughs that I often mix up my idioms. It’s not rocket surgery I tell him. A few years ago I had a sarcoma
Rare Diseases Day started several years ago as an awareness campaign built on the idea that there is strength in numbers. There is power in
At 6pm on Friday, October 17th, 2014, mutants gathered in the Pine Room at the Embassy Suites in Portland, Oregon. As they munched on
