By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
by Fannie Lemay – I was always lucky that way. I was never preoccupied by how I looked. I considered myself average looking and figured
Li-Fraumeni Syndrome may be rare, but the families and individuals whose lives have been affected by LFS have been featured in local, national, and international
The genetic mutation that causes Li-Fraumeni syndrome has the potential to unlock cancer FOR IMMEDIATE RELEASE: February 5, 2021 East Coast: Greg Harper President, Living
Support LFS Hardship Grants by ordering an LFS Awareness Day Elephant Shirt! But… why elephants? The TP53 gene is a tumor-suppressor gene, often called “the
Living LFS is working to promote research opportunities for our families with LFS. A new study that is currently enrolling is called the Li-Fraumeni &
For those of you who are new, welcome, we are so happy you’ve joined us! For those who have been with us, we’re so glad
by Fannie Lemay – When I was diagnosed with Li-Fraumeni syndrome in 2016 and then three weeks later with stage 3 brain cancer, I felt
I took this photo and wrote the following in May of 2019, on my 10 year anniversary of moving home to San Diego from Australia. As
Recently in the private Li-Fraumeni Syndrome support group, there was a question about the difference between PET scans and MRI’s and which was better. The
