Scanxiety
Scanxiety is a very real emotion for many people with cancer and is especially prevalent in LFS. Anxiety causes shortness of breath- or is it
September 26, 2013
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Scanxiety is a very real emotion for many people with cancer and is especially prevalent in LFS. Anxiety causes shortness of breath- or is it
There is no official awareness ribbon color for adrenocortical carcinoma(ACC), definitely not one that would be recognizable since it is such a rare cancer. This
A woman with Li-Fraumeni Syndrome has a 90% or greater chance of developing cancer in her life. Much of this risk is due to breast
There are really tough decisions when you find out you have cancer. There are a lot of really tough decisions to make when you have
Magnetic Resonance Imaging. MRI. MRIs use powerful magnets and radio waves to create images of the body. The benefit to people with LFS is that
Living with LFS can present challenges to the healthiest of family relationships. Many families with LFS have to find a way to adjust to their
Most people with Li Fraumeni Syndrome know they have a mutation. Some can even tell you at which codon their mutation occurred(don’t feel bad if
For decades, those with Li Fraumeni Syndrome have struggled with knowing they are at a higher risk for cancer. Many of these LFSers want to
The Ride By Linda Zercoe July 5, 2013 I live in beautiful California about 35 miles east of the great city of San Francisco.
July is Sarcoma Awareness Month and there is a LONG way to go on the road to awareness. Mere weeks after having a Fibrohistiocytic Tumor
