Living LFS was fortunate to attend the Li-Fraumeni Syndrome Association’s REACH 18 International Symposium in Toronto, Canada from April 25-29. Board members and support group
Few things are more frustrating than looking for answers and getting the response- we don’t know. Sometimes, a person agonizes over the decision to be
Video credit: CTV Toronto: Sick Kids Cancer genetics Program At age 3, now 14 year old Alaya was diagnosed with Leukemia. 10 years later, she
Mutants are sensitive to radiation. We avoid radiation when possible because ionizing radiation causes breaks in DNA that our mutant p53 is not good about
In 1969, Dr. Frederick Li was having a casual conversation with a couple of colleagues at the National Cancer Institute. He became intrigued by hearing
One of the first questions mutants ask after diagnosis is- where should I go to receive the best care for LFS? Like everything when living
It is difficult for most people to imagine what it is like when your child has cancer. I have tried to explain what my son
Magnetic Resonance Imaging. MRI. MRIs use powerful magnets and radio waves to create images of the body. The benefit to people with LFS is that
For decades, those with Li Fraumeni Syndrome have struggled with knowing they are at a higher risk for cancer. Many of these LFSers want to
July is Sarcoma Awareness Month and there is a LONG way to go on the road to awareness. Mere weeks after having a Fibrohistiocytic Tumor
