World Rare Disease Day 2016: Li-Fraumeni Syndrome
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
A friend with LFS recently asked me about CoQ10 supplements and their anti cancer effects. Supplements are yet to be regulated, certified or otherwise cross
Elephant genes hold big hopes for cancer researchers: Elephants have 100 times more cells in their bodies than humans, which should make them far more
Research articles often are difficult for the average person to understand. One of our goals at living LFS is to help make this information easier
[pdf-embedder url=”https://livinglfs.org//wp-content/uploads/2016/01/LFS-Final-Project-Jennifer-Mallory-copy.pdf”] A few months ago, I had the opportunity to take an online course entitled Introduction to the Science of Cancer offered by the
A year ago, a group of ladies who became friends in a support group for LFS met up to talk about what we could do
Lisanne’s grandfather, three of her aunts, an uncle and a nephew – all of them died from cancer. Her daughter got a brain tumour at
Surviving Childhood Cancer can leave quite an impact. Not only are there long term health effects from intense treatments, there are often emotional scars left.
Brian Ries- No Matter the Odds, Keep Fighting. About a month ago, I reached out to the support group to see if anyone was willing
One of the big complaints with rare syndromes is that there aren’t enough clinical studies to address our needs. PROMPT is a study that combines