It is difficult to imagine anything good coming from being diagnosed with Li-Fraumeni Syndrome. Yet as our members remind us, the good is in what
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
A friend with LFS recently asked me about CoQ10 supplements and their anti cancer effects. Supplements are yet to be regulated, certified or otherwise cross
Research articles often are difficult for the average person to understand. One of our goals at living LFS is to help make this information easier
[pdf-embedder url=”https://livinglfs.org//wp-content/uploads/2016/01/LFS-Final-Project-Jennifer-Mallory-copy.pdf”] A few months ago, I had the opportunity to take an online course entitled Introduction to the Science of Cancer offered by the
The LFS community is extremely rare. We have a rare hereditary cancer syndrome with increased risk of all kinds of rare cancers. In our support
An important part of our mission is to raise awareness for and connect those who are living LFS. Just launched in November is our T-shirt
A year ago, a group of ladies who became friends in a support group for LFS met up to talk about what we could do
Lisanne’s grandfather, three of her aunts, an uncle and a nephew – all of them died from cancer. Her daughter got a brain tumour at
Surviving Childhood Cancer can leave quite an impact. Not only are there long term health effects from intense treatments, there are often emotional scars left.
