by Ann Ramer I had the opportunity to visit with Dr. Mark Robson this week when I travelled to NYC to follow up with my
MDAnderson recently announced the beginning of a clinic for patients with Li-Fraumeni Syndrome at their cancer center in Houston, Texas. The Program is called LEAD-
Thank you for giving me an opportunity to introduce myself to this very important group. My name is Carly, and I have been a genetic
Perhaps you had cancer at an early age, or your child had a cancer at an early age and while talking to an oncologist you
When you are living with LFS, there are a lot of positives and negatives. Almost everyone is positive that they don’t want to be positive-
There is no official awareness ribbon color for adrenocortical carcinoma(ACC), definitely not one that would be recognizable since it is such a rare cancer. This
Living with LFS can present challenges to the healthiest of family relationships. Many families with LFS have to find a way to adjust to their
A few days ago my daughter texted a request to me. She set up a blog as a compendium for the Facebook LFS Support
